rare diseases
罕见病
2025-11-01 12:17 浏览次数 9
罕见病
Rare Diseases Database罕见疾病临床研究数据库
Rare and Orphan diseases罕见病和孤儿病
Endemic And Rare Diseases地方病罕见病
Drugs for Rare Diseases罕见病用药
rare and obstinate diseases奇难病
Rare Diseases without Borders罕见无国界
rare abdominal diseases腹部罕见疾病
Prevention of rare diseases罕见疾病防治
Office of Rare Diseases罕见疾病办公室
researchers have also instigated a programme to develop management guidelines for rare diseases by adapting validated methodologies.
研究人员还开发适应验证的方法,对罕见疾病的管理指引。
eurordis estimates that at least 80% of them have identified genetic origins.[8] other rare diseases are the result of infections and allergies or due to degenerative and proliferative causes.
其他罕见病的病因主要是由于感染和过敏性反应,或者机体退化与部分结构的增生。
it is very easy to find dozens of often rare diseases that seem to match your symptoms.
你常常可以毫不费力就找到许多种跟你癥状相符的罕见疾病。
the rise of social networking has made it easier for people with rare diseases to connect with each other and feel less alone.
社交网络的普及使得患有罕见疾病的人可以相互联系,不那么孤独。
since focusing its r&d on rare diseases and biotech, including vaccines for the likes of h1n1, the swiss pharma giant has been in a fever of invention.
诺华制药自从将研发领域集中在罕见疾病(包括开发类似甲型h1n1流感的疫苗)与生物科技以来,这家瑞士制药巨头一直在狂热地发明新产品。
the cystic fibrosis foundation has revolutionized the way drugs for rare diseases are developed and the multiple myeloma research foundation has helped change the way that blood cancer is treated.
囊性纤维化基金会(cysticfibrosisfoundation)使罕见疾病药物的开发方式发生了变革,多发性骨髓瘤研究基金会(multiplemyelomaresearchfoundation)已经帮助医生改变了血癌的治疗方法。
provide the latest and most comprehensive news of rare diseases in medicine, research, policy, social and governmental activities. at the same time, create and improve a patient database.
为相关方提供罕见病领域最新、最全面的医药、研究、社会活动、政策等各个方面的信息,同时建立和完善国内患者数据库。
a statistical method for testing efficacy of treatment in individual patient with chronic or rare diseases is worked out.
作者对慢性病、罕见病单个病例的临床治疗试验提出了一种统计检验方法。
in the post-aids often suffer from a number of rare diseases such as pneumocystis carinii pneumonia, toxoplasmosis, atypical mycobacterial and fungal infections.
在感染艾滋病后往往患有一些罕见的疾病如肺孢子虫肺炎、弓形体病、非典型性分枝桿菌与真菌感染等。
rare diseases can vary in prevalence between populations, so a disease that is rare in some populations may be common in others. this is especially true of genetic diseases and infectious diseases.
罕见病在不同的人群中的流行性差异很大,某种疾病在一个人群中很罕见,在另一个人群中可能就很常见了,这就是流行性疾病和遗传性疾病之间的差异所在。
the rise of social networking has made it easier for people with rare diseases to connect with each other and feel less alone.
随着社交网络用户的增长使得患有罕见疾病的人们更加容易相互联系,让自己减少孤单感。
for developing new vaccine technologies; targeting rare diseases as a means of treating more widespread illnesses; and using leading-edge architecture to foster breakthroughs at its r&d facilities.
开发新型疫苗技术;将罕见疾病视为治疗广泛疾病的手段;利用前沿性架构,在研发设备上力争突破。